tag:blogger.com,1999:blog-75090899450218361142024-03-13T12:38:30.822-06:00My Chronic Kidney DiseaseA personal, non-medical, blog chronicling the experiences and learnings of a regular, healthy, person diagnosed with chronic kidney disease (CKD) in 2009 at age 36. Feel free to participate with your own experiences and remember that works or fails for me won't necessarily be right for you. Please don't take anything here as medical advice and always consult a doctor.RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.comBlogger102125tag:blogger.com,1999:blog-7509089945021836114.post-16190281027847040942021-06-30T21:00:00.001-05:002021-06-30T21:00:54.320-05:002021 Serum Creatinine rising<p>Since 2016 my serum creatinine has been rising at a surprisingly constant rate
(see graph), suggesting a progressively declining kidney function, reaching a
peak of 2.7mg/dL (Estimated GPR 26 mL/min/1.73m2, stage IV) 6 weeks ago
(13-May-2021).</p>
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<p>Shocked and depressed at this decline I met with a new nephrologist to see what
she recommends to reduce the rate of decline. She didn't really offer any new
advice but ordered more tests which I did on 23-Jun-2021. She also weighed me,
78kg, which is lighter than I expected (I'm 1.82m tall). I have been exercising
almost daily the last year or so, so I guess I've lost a few kilos of body fat.</p>
<p>The tests on 23-Jun-2021 showed a creatine level of 2.4 ml/dL which is a change
in the right direction. The things I did between the two last tests which may
have impacted the result were:
<br/>- Watch my diet carefully, eating very few animal
proteins and especially avoiding cheese (high salt).
<br/>- Meditate with afirmations
in the form of questions like "Why is my serum creatinine at 1.8?" (I didn't hit
that target obviously), "Why do my kidneys work so well?", "Why are my kidneys
no longer inflammed?", etc.
</p>One of my previous nephrologists said that reducing
protein consumption can reduce the creatinine reading (which wouldn't
necessarily mean any improvement in kidney function) but this nephrologist said
that the amount of creatinine released into the blood is determined more by
muscle mass (which may have increased slightly over the last year or so, as I've
done more exercise. Certainly my muscles are stronger now than say 2 years ago).</p>
<p>I also tested for Bicarbonate and Vitamin D. Both were within normal range,
though the Vitamin D was on the low side and I certainly have the symptons of
Vitamin D deficiency (fatigue).</p>
Rohanhttp://www.blogger.com/profile/08379277364357207744noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-85657333063354782922020-05-12T14:22:00.003-05:002020-05-12T14:22:43.407-05:00Chronic Kidney Disease Research CommunitySome kind of online community for Chronic Kidney Disease is being created.
My understanding is that people can share their data and experiences and perhaps receive recommendations. Click the following link to find out more and sign up:
https://stuff.co/s/icjdGZMQRohanhttp://www.blogger.com/profile/08379277364357207744noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-25791271042393892292019-06-10T10:17:00.001-05:002019-06-10T10:20:17.611-05:002019 Blood test results - more kidney function degradation :(I have been suffering on and off from intestinal inflammation over the last four months, causing abdominal pain and discomfort. The initial attacks seem to have been triggered from eating a peanut and dried fruit trail mix (on four occasions after eating said trail mix I had symptoms within a few hours / next morning) but it's not clear whats causing the symptoms to remain three months later. An ultrasound shows no other problems except the inflammed small intestine. A specialist ordered lab tests (which I was overdue for anyway), antiparasite medication (which had no effect), and an anti-inflamation medicine, which also has had little effect.
Unfortunately the <a href="https://docs.google.com/spreadsheets/d/1G0WEsPxngX-lorVAL3c-jqkqrzy5wqud9iEqOHPB4Qc/edit#gid=0">lab tests show a ~10% degradation of kidney function compared to tests a year ago</a>:
I feel this degradation of kidney function may be related to the the intestinal inflammation (maybe whatever is causing this is also causing kidney inflammation) and so hope to get this resolved as soon as possible and start a renewed effort to improve my overall health with daily exercise and more careful attention to diet! Will test again after a few months of dedicated wellness activies and see if it shows any improvement.Rohanhttp://www.blogger.com/profile/08379277364357207744noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-66808164038717344242019-02-13T13:35:00.003-06:002021-06-30T21:13:46.209-05:00Kidney degradation not inevitable?<p>The following article says a recent study shows that while kidney function tends to decline with age in more developed societies, this is not necessarily the case in less developed societies. That is, it seems like there may be something (or many things) about our "advanced" lifestyle which causes kidney degradation with age. No clues as to what that might be yet but adopting a more "primitive" diet (less processed food, more fruits and vegetables) certainly seems like it would probably benefit the kidneys.</p>
</p><a href="https://www.economist.com/science-and-technology/2019/02/13/loss-of-kidney-function-in-old-age-is-not-inevitable">https://www.economist.com/science-and-technology/2019/02/13/loss-of-kidney-function-in-old-age-is-not-inevitable</a></p>
<p>Since being diagnosed with chronic kidney disease (CKD) almost 10 years ago I have fortunately so far managed to avoid further measurable kidney degradation. My diet has basically been:
<br/>- Relatively small amounts of animal proteins (no beef/pork/chicken/etc., fish/seafood maybe twice a month, eggs once week, yogurt and cheese a couple of times a week, no milk).
<br/>- Limited wheat (I found that wheat seems to cause me abdominal swelling).
<br/>- Lots of fruit, vegetales and nuts (bananas, avocados, broccoli, carrots, apples, almonds, unsalted peanuts, beetroot, lettuce, tomato, beans, etc.).
<br/>- Low sugar and salt (no added salt in cooking. Avoid high salt foods).
<br/>- A certain amount of starchy foods every day: Rice, corn, oatmeal, sweet potatoes, potatoes.
</p>Rohanhttp://www.blogger.com/profile/08379277364357207744noreply@blogger.com1tag:blogger.com,1999:blog-7509089945021836114.post-71629112752408439382018-07-15T12:48:00.000-05:002018-07-15T12:48:30.004-05:00Surefire way to reduce blood pressure without drugsAlmost by accident I've discovered that running temporarily reduces my blood pressure significantly: I've measured by before and after blood pressure 4 times now and in each case it's dropped from around 130/80 to around 115/70 (or less) after running ~2km (~1 mile) (which is around 10 minutes running for me). The effect only lasts a few hours but I'm guessing that running twice a day could help a lot in keeping the pressure down, and thus reduce the damage to the kidneys from high blood pressure. My only problem is that as well as chronic kidney disease, I also suffer from chronic laziness... but I guess it's just a matter of acquiring the habit.Rohanhttp://www.blogger.com/profile/08379277364357207744noreply@blogger.com1tag:blogger.com,1999:blog-7509089945021836114.post-36663816467074041372018-07-12T17:42:00.000-05:002018-07-12T17:42:15.570-05:00The dangers of Internet diagnosisThe last month I have been suffering horribly from itchy skin, mostly in the legs. Because there were no visual signs at first, I self-internet-diagnosed the itchiness as a symptom of poor circulation (a few months ago I was diagnosed with a probable small blood clot in one of my legs). My doctor for circulation issues is located about an hour's drive away and in any case had no appointments immediately available so I self-medicated by doing exercise (to improve circulation) and applying moisturizing cream to reduce the itchiness.
Unfortunately, over the weeks, things worsened until the itchiness spread all over my body, in patches of visible spots, and so uncomfortable it was interfering with my work and leisure. Now it was obvious that this must be some kind of skin issue and probably not related to circulation or my kidney disease (which can also cause itchiness in the late stages). I called my usual dermatogist. Next available appointment in 6 weeks. I'd probably commit suicide by then because the itching was driving me crazy. Managed to get an appointment with a general practitioner who swiftly diagnosed the problem as scabies, a microscopic parasite whose larvae burrow into the skin. While relieved to find I had a treatable condition, I felt like such an idiot for suffering for so long just because of my general reluctance to organize a visit to the doctor.
Moral of the story: SEE AN EXPERT as soon as things start getting worse!
Second moral: Those of us who have easy access to healthcare are unbelievably lucky compared to the most of the world's population. We should appreciate that and not take it for granted.Rohanhttp://www.blogger.com/profile/08379277364357207744noreply@blogger.com1tag:blogger.com,1999:blog-7509089945021836114.post-87997228443315515982018-02-23T18:24:00.001-06:002018-02-24T10:27:18.341-06:002018 test results - slight degradationI made my yearly trip to the laboratory to analyze my blood and urine. The results are in the last column of the following spreadsheet:
<br />
https://docs.google.com/spreadsheets/d/1G0WEsPxngX-lorVAL3c-jqkqrzy5wqud9iEqOHPB4Qc/edit#gid=0
<br />
<br />
My blood creatinine is at 2.3mg/dL which apparently isn't a clinically significant increase over the average 2.0mg/dL I've had since diagnosis in 2009, however combined with some other factors, explained below, I feel it does represent a slight decline in my kidney function and a sign I should make more of an effort to look after myself. This level of creatinine gives an estimated GFR (kidney filtration rate) of 33mL/min/1.73m2. Normal filtration is over 100. Filtration of less than 15 requires dialysis. Hoping I never get to that point.
<br />
<br />
Over the last few years I've noticed poor circulation in my legs, with red spots appearing on my lower legs and larger stains around the ankles (see photo).<br />
<a href="https://1.bp.blogspot.com/-Rg8hGA5CWhk/WpCkVU6ctHI/AAAAAAAAA-8/r_kGTR8sEGcMuAgs6AFwuw9RaixpBljvwCLcBGAs/s1600/Captura.JPG" imageanchor="1"><img border="0" data-original-height="679" data-original-width="392" height="320" src="https://1.bp.blogspot.com/-Rg8hGA5CWhk/WpCkVU6ctHI/AAAAAAAAA-8/r_kGTR8sEGcMuAgs6AFwuw9RaixpBljvwCLcBGAs/s320/Captura.JPG" width="185" /></a><br />
I'm not sure how related this is to the kidney disease but for a while I used to sleep with my legs raised and it seemed to help. For the last few months however:
<br />
a) I've been doing less exercise as my bicycle (previously my main form of transportation) was stolen from my home and I was reluctant to buy another in case it suffered the same fate.
<br />
b) I kind of forgot about sleeping with my legs raised.
<br />
c) My blood pressure has tended to be elevated.
<br />
<br />
The reduced excercise has added a lump of fat on my belly and then a week ago I started feeling a strong pain inside one of my lower legs which seemed to fit the symptoms of some sort of blood clot. Ultrasounds have confirmed probable "deep vein thrombosis" and a specialist has put me on a (expensive) blood thinning drug for two weeks and given me some very stylish knee length compression socks to wear.
<br />
<br />
I've taken all this as yet another wake-up call to focus more on my health and making an effort to eat only healthy food and get lots of exercise and sleep.
Regarding diet, I've been eating wheat over the last year or so, thinking that perhaps it wasn't particularly problematic. However given my worsening kidney function, I'm going to try eliminating it again for six months and see if any improvement is registered. I'll also be watching my consumption of salty foods, like cheese, which I've gradually been eating more of than previously. Stay tuned...Rohanhttp://www.blogger.com/profile/08379277364357207744noreply@blogger.com4tag:blogger.com,1999:blog-7509089945021836114.post-56526778191127169232017-05-04T10:00:00.001-05:002017-05-04T10:00:40.175-05:00Blood test results 2017My serum creatinine is at 2.2mg/dL (normal would be máximum 1.3mg/dL), which is the highest since may 2009 when it was 2.4mg/dL. While this could be considered a disimprovement, it could also just be a temporary blip. I did eat a whole fish a few days before the test, so that could have elevated my blood creatinine level. Here's hoping that we're not observing degradation...<br />
<br />
The rest of the results were fairly stable and normal or close to normal, with the exception of Uric Acid at 8.9mg/dL (normal 7.2mg/dL) but this has been up and down since diagnosis in 2009, ranging from 4.7 to 9.2mg/dL.<br />
<br />
Full lab test history:<br />
https://docs.google.com/spreadsheets/d/1G0WEsPxngX-lorVAL3c-jqkqrzy5wqud9iEqOHPB4Qc/edit#gid=0<br />
<br />
Blood pressure, with treatment, has been around 125/75 during the last year.<br />
<br />
So, all in all, things seem to be stable and I'll continue with the same regime:<br />
<ul>
<li>Losartan 50mg / day for blood pressure. Without treatment I would probably be around 130/90.</li>
<li>No meat. Occasional fish and seafood (maybe once or twice a month).</li>
<li>Occasional eggs, cheese and yogurt (around once a week).</li>
<li>Lots of fruit.</li>
<li>Fair amount of vegetables, rice, maize (corn), potatoes, sweet potatoes, beans, avocado, coconut, nuts.</li>
<li>Fair amount of cacao, mostly in <a href="http://kicao.com/">Kicao</a> bars (I work for this company).</li>
<li>Very little wheat or pure milk (not sure if this is relevant to kidney fucntion or not but it seems to have helped my intestines).</li>
</ul>
Wishing you all the best with your journey.<div>
<br /></div>
RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com1tag:blogger.com,1999:blog-7509089945021836114.post-598150317649749152016-11-07T16:27:00.001-06:002018-02-24T10:27:44.046-06:00Blog Nephrologist Dr. Veeraish ChauhanCame across the interesting blog of the nephrologist Dr. Veeraish Chauhan today while trying to find evidence supporting nettle seed extract for kidney regeneration. He also investigated nettle LEAF treatment and could find no evidence for it, though some of his readers swear it seemed to reduce their creatinine levels. In any case it's a very interesting source of information for anyone struggling with kidney disease as it comes directly from someone with medical training engaged in treating people day in day out:<br />
<br />
<a href="http://www.kidneydoctorbradenton.org/2013/06/can-certain-herbal-medications-treat.html">http://www.kidneydoctorbradenton.org/2013/06/can-certain-herbal-medications-treat.html</a>RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-73844531921838723642016-09-23T09:30:00.002-05:002016-09-23T09:30:34.925-05:00Stinging Nettle Seed ExtractHere's an interesting, supposedly unbiased, article that suggests that Nettle Seed Extract (urtica dioica) may help restore kidney function. The author claims to have used it successfully in two patients.<br />
<br />
<a href="http://jonathantreasure.com/evidence-research-testimonials-case-history/case-histories/nettle-seed-kidney-function/">http://jonathantreasure.com/evidence-research-testimonials-case-history/case-histories/nettle-seed-kidney-function/</a><br />
<br class="Apple-interchange-newline" />
The extract he used was the following:<br />
<a href="http://www.herbalist-alchemist.com/item/Stinging-Nettle-Seed-NTS--683">http://www.herbalist-alchemist.com/item/Stinging-Nettle-Seed-NTS--683</a><br />
<br />
Has anyone tried this? Sounds like it would be worth a shot...RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com1tag:blogger.com,1999:blog-7509089945021836114.post-46464716976633772572016-04-29T19:40:00.003-05:002016-04-29T19:40:29.119-05:00Another video from Dr Greger comparing animal protein to vegetable protein on kidney health:<br />
http://nutritionfacts.org/video/which-type-of-protein-is-better-for-our-kidneysRBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-31093000873063863502016-03-21T18:27:00.002-06:002016-03-22T08:32:47.539-06:00An interesting video suggesting a plant-based diet may be beneficial in the treatment of kidney disease:<br />
<br />
http://nutritionfacts.org/video/treating-chronic-kidney-disease-with-food/?utm_content=bufferc8bce&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer<br />
<br />
I have had a basically vegetarian diet since childhood and unfortunately it didn't stop me developing kidney disease but it may well be a factor in maintaining a steady level of kidney function loss since diagnosis 7 years ago.RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com4tag:blogger.com,1999:blog-7509089945021836114.post-41336386711401960492016-01-29T17:30:00.001-06:002016-01-29T17:30:22.483-06:00Acid load damages kidneys?<br />
<br />
The following video explains how animal proteins increase acid load compared to plant proteins and this seems to be damaging to kidneys. Interesting. The message, as always, is "eat more fruit and vegetables"!<br />
<br />
http://nutritionfacts.org/video/protein-source-an-acid-test-for-kidney-function/RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-77206349665009229262016-01-16T19:25:00.002-06:002016-02-20T13:36:11.081-06:00Test results 2016About 15 months have zoomed by since my last lab tests and so I was delighted to find no significant change in today's test results. My blood creatinine level remains at 2.0mg/dl, which is right where it was when I was first diagnosed with chronic kidney disease almost seven years ago. Kidney disease tends to progress so I consider avoiding progression an achievement!<br />
<div>
<br /></div>
<div>
<a href="https://docs.google.com/spreadsheets/d/1G0WEsPxngX-lorVAL3c-jqkqrzy5wqud9iEqOHPB4Qc/pubhtml">You can view 7 years of my test results, from initial diagnosis to present, here.</a></div>
<div>
<br /></div>
<div>
I can't say if my attempt to live a healthy lifestyle has been a factor in avoiding progression of the disease but it probably doesn't hurt (and has other benefits), so here's what I do:</div>
<h3>
Diet</h3>
<div>
<ul>
<li>Relatively low protein (protein is believed to damage kidney nephrons). In my particular case this means no meat; fish about once or twice a months; eggs once or twice a week; dairy a few times a week; tofu a couple of times a month; rice and beans quite often, etc.</li>
<li>Very little sugar or salt (my theory is that these encourage unhealthy eating by making undesirable foods seem tempting).</li>
<li>Very little wheat. Around the time of my diagnosis with kidney disease I would often have large, hard, balls of gas in my intestines (these were visible on an ultrasound but the doctor I saw at the time couldn't think of any reason for them so just told me to chill out more). Avoiding wheat and/or too many simple carbohydrates seems to keep the problem at bay.</li>
<li>Light breakfast: Bananas and almonds usually.</li>
<li>Snacks of fruit and nuts (especially pure cacao).</li>
<li>Filling lunch (dinner): Usually a small amount of protein, some carbs, vegetables and salad. Avocado and beetroot feature quite often.</li>
<li>Light supper: Sometimes amaranth and yogurt, sometimes humus and carrots, sometimes an apple.</li>
</ul>
<h3>
Exercise</h3>
<div>
I still don't do as much exercise as I think I should but probably more than most people as I cycle about 40 minutes a day and generally try to go out of my way to be active (despite having a desk job). I manage to maintain a reasonably slim physique but could probably lose a couple of pounds around the waist...</div>
<h3>
Sleep</h3>
<div>
I don't sleep as well or as much as I would like to but do get close to at least 7 hours of sleep a night.</div>
</div>
<h3>
Meditation</h3>
<div>
Have tried and failed several times to incorporate some form of meditation into my day as many people seem to enjoy great benefits from this. New habits are hard to form!</div>
RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com2tag:blogger.com,1999:blog-7509089945021836114.post-14773128565823529742014-09-02T21:49:00.000-05:002014-09-02T21:49:02.461-05:00Blood test results 2014After over a year with no tests, I decided to subject myself to the needle again and have my blood analyzed.<br />
<br />
<h2>
<b>The good news: no change</b></h2>
The tests show no signs of kidney function degradation. Serum creatinine is 2.0mg/dL, exactly what it was when I was diagnosed with Chronic Kidney Disease over five years ago. All other parameters are pretty consistent with the results obtained over the last five years and are within, or close to, the normal healthy range.<br />
<br />
This either means that:<br />
a) My hard work watching my diet and trying to live a healthy life is paying off and protecting my kidneys from further damage, or,<br />
b) None of my lifestyle changes have made any difference whatsoever!<br />
<br />
Truthfully I don't know which statement is correct but there are other benefits to being healthy and I'm convinced that in the long run it will help me extend my life. In any case my dietary choices are more about moderation and avoidance rather than total exclusion... though I haven't had any pizza in a really, really, really long time...<br />
<br />
<a href="https://docs.google.com/spreadsheet/pub?key=0AhX6YZKS2qpCdFpObVlQQXNmMjBfT19kUUdxUHAxaEE&output=html">View lab results (5 year history)</a><br />
<h2>
<b>GFR: Glomerular Filtration Rate</b></h2>
Kidney function is measured by their GFR, basically how much filtering power they have. Normal is over <span class="st">90mls/min/1.73m2 and "failure" (inability to filter sufficient toxins from the blood) is </span><span class="st">15mls/min/1.73m2.</span><br />
<br />
<span class="st">Previously I've a few creatinine clearance tests to estimate my GFR. These tests require collecting ones urine over a 24 hour period so the lab can measure how much creatinine has been filtered from the blood, compared to the level remaining in the blood, and use this to estimate the GFR. Unfortunately it's apparently not all that accurate and my own lab tests have shown a lot of variance: as high as 52.5 and as low as 30.0, which frankly is a bit an emotional roller coaster ride. Given the questionable utility of the results and the inconvenience and cost of the process, I decided to give it a miss.</span><br />
<span class="st"><br /></span>
<span class="st"><a href="https://www.kidney.org/professionals/kdoqi/guidelines_ckd/p5_lab_g4.htm">This interesting article</a> suggests that estimates based on serum creatinine levels adjusted for body weight, etc. have proved to be more accurate than creatinine clearance tests and I believe it given the that my serum creatinine level has been fairly constant: 1.8mg/dL to 2.4mg/dL. Variations in the serum creatinine level are probably due to variations in protein intake. Unfortunately they say the estimation formulas may not work well in cases where the subject differs significantly from the population used to develop them, giving the example of a vegetarian diet. I don't eat any meat or chicken but I do it fish and eggs, so hopefully the formulas will be somewhat accurate.</span><br />
<span class="st"><br /></span>
<span class="st">In my case the <a href="http://nkdep.nih.gov/lab-evaluation/gfr-calculators/adults-conventional-unit.asp">MDRD calculator</a> gives a worst case estimate of GFR of 30mls/min/1.73m2, which is consistent with the creatinine clearance tests.</span><br />
<br />
<span class="st">Apparently GFR tends to decrease by around 1mls/min/1.73m2 every year. If this happened to me it would imply that I have around 15 years of healthy life left before reaching kidney failure (15mls/min/1.73m2). Hopefully I can beat the "average" and extend my mileage by looking after my body.</span><br />
<h2>
<b><span class="st">Lifestyle</span></b></h2>
<span class="st">As a reference, my current lifestyle, which may or may not be optimal, is as follows:</span><br />
<br />
<b><span class="st">Exercise:</span></b><br />
<ul>
<li><span class="st">Sedentary office job 8 to 10 hours a day. I try to get up and move around during the day however to avoid sitting for long periods.</span></li>
<li><span class="st">Cycle everywhere. About 40 minutes a day.</span></li>
<li><span class="st">Occasional moderate exercise (body weight exercises, swimming, etc.). I should probably do more of this.</span></li>
</ul>
<b><span class="st">Diet:</span></b><br />
<span class="st">No meat or chicken. Occasional fish and eggs. No gluten (I feel I may have sensitivity to gluten, though I'm not 100% sure). Very limited consumption of products with added sugar and salt. Limited starch, mostly rice and potatoes. Lots of nuts (almonds, pecans, cacao), fruits and vegetables.</span><br />
<span class="st"><br /></span>
<span class="st"><b>Sleep:</b> </span><span class="st">Try to get enough sleep so I wake naturally shortly after dawn. For me this is around 8 hours.</span><br />
<h2>
<b><span class="st">Medications</span></b></h2>
<span class="st">I've been taking 50mg/dL of <a href="http://en.wikipedia.org/wiki/Losartan">Losartan</a> (Cozaar), an ARB, fairly steadly since diagnosis of CKD. This was initially prescribed to reduce my blood pressure. A month ago I fasted for a day as a kind of "body reset" and found that my blood pressure dropped to around 100/60 so I stopped taking the medication. Since then I have been checking every day and my blood pressure has remained below 120/70 even without medication (or further fasting). I will probably start taking the medicine again at some point, as the experts seem to think that it is beneficial to conserving kidney function for reasons other than blood pressure reduction.</span><br />
<span class="st"></span>RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com3tag:blogger.com,1999:blog-7509089945021836114.post-91283399031229335242014-08-12T13:31:00.002-05:002014-08-12T13:31:58.841-05:00Living with Reduced Kidney FunctionJust wanted to share this "<a href="http://www.kidney.org.au/ForPatients/LivingwithKidneyFailure/ReducedKidneyFunction/tabid/830/Default.aspx">Living with Reduced Kidney Function</a>" guide I came across from Australia as I think it has very useful information for anyone dealing with chronic kidney disease. The focus of the guide is the practical steps patients can take to conserve their kidney function and slow down or halt degradation.<br />
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<br />RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com3tag:blogger.com,1999:blog-7509089945021836114.post-79388141861245024212013-07-23T11:19:00.002-05:002013-07-23T11:19:36.516-05:00<a href="http://nutritionfacts.org/">NutritionFacts.org</a> - the health benefits of a plant based diet<br />
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Dr McGregor is a very amusing doctor who recommends a plant based diet based on the health benefits discovered by mainstream medical research. He has a little bit to say about kidneys <a href="http://nutritionfacts.org/2012/10/04/preventing-kidney-failure-with-diet/" target="_blank">here</a> but I recommend you view his general presentations like <a href="http://nutritionfacts.org/video/more-than-an-apple-a-day-preventing-our-most-common-diseases/" target="_blank">this one</a> as they're pretty amusing and informative. <br />
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Personally his presentations have inspired me to limit my animal protein intake. Let's see how it goes.RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-19497322196444244402013-04-30T22:44:00.001-05:002013-04-30T22:44:07.557-05:00A whole year had passed since my last lab tests so I've subjected myself to another round of needles and blood and urine collection.<br />
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The good news is that nothing much has changed. My current <strong>blood creatinine</strong> level, the most common marker of kidney function, is 2.1mg/dL. The lowest reading I've had was 1.8mg/dL while the highest reading was 2.4mg/dL. The doctors say that a significant change is 1mg/dL, so probably my kidney function is about the same as when I was first diagnosed four years ago. This is pretty good because I've seen some progression graphs that show people going from my level to failure in around seven years!<br />
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<strong>Creatinine clearance</strong> is a supposedly more accurate measure of kidney function, as it directly measures how much creatinine gets filtered out of your blood and into your urine, but my results have been quite variable. My best result as been 52ml/min (which corresponds to around 50% of normal kidney function) and my worst has been 33ml/min (about 30% of normal). My current result was 37ml/min.<br />
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The amount of <strong>protein in the urine</strong> is also around the same as previous readings: 815mg in 24 hours. 300mg is the upper "normal" limit. The lowest I've had is around 335mg and the highest 1485mg.<br />
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One interesting change was an increase <strong>hemoglobin</strong> to 14g/dL, which takes me out of the anaemic range (less than 13g) for pretty much the first time. Not sure what caused that. Possibly increased cacao, bean and cabbage consumption (I've been experimenting with homemade fermented cabbage) which contain iron.<br />
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<strong>My current thinking on surviving chronic kidney disease</strong><br />
Current medical opinion is that damaged kidneys can't be repaired and their function worsens over time. I haven't, unfortunately, found any evidence to contradict the essence of this opinion but there does seem to be evidence that the decline in kidney function can be slowed (or even stopped) by adopting healthy lifestyle habits, which to me mean:<br />
<ul>
<li>Avoid all refined sugar and salt. Apart from being bad in themselves, I believe these ingredients trick your body into thinking what you're eating is more nutricious than it really is.</li>
<li>Limit the amount of starchy foods you eat. Supposedly these turn into sugar pretty quickly in your body which may be a problem if you have excess body fat or at risk of diabetes.</li>
<li>Eat mostly plants. Here is a <a href="http://nutritionfacts.org/video/uprooting-the-leading-causes-of-death/" target="_blank">very entertaining and informative presentation</a> about the reduction in health risks that vegans apparently enjoy.</li>
<li>Experiment with your diet to find out if any foods seem to have negative effects on your well-being, e.g. milk, wheat, coffee, etc.</li>
<li>Do enough exercise to keep yourself in shape. High intensity training is in fashion right now and has the advantage that it doesn't take much time out of your day.</li>
<li>Learn to be happy. Figure out what makes you happy and do more of that. If you really think about it, you'll probably find that nothing else matters too much. On the subject of happiness, I found <a href="http://www.amazon.com/gp/product/B003E749TE/ref=as_li_qf_sp_asin_tl?ie=UTF8&camp=1789&creative=9325&creativeASIN=B003E749TE&linkCode=as2&tag=worldexperiencec">The Happiness Hypothesis: Finding Modern Truth in Ancient Wisdom</a><img alt="" border="0" height="1" src="http://www.assoc-amazon.com/e/ir?t=worldexperiencec&l=as2&o=1&a=B003E749TE" style="border: none !important; margin: 0px !important;" width="1" /> to be a very interesting analysis of ancient wisdom from the viewpoint of current psychology research.</li>
</ul>
I'm going to try and take even better care of myself for the next year and see what happens!RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com12tag:blogger.com,1999:blog-7509089945021836114.post-81767927212115500142012-06-26T09:44:00.002-05:002012-06-26T09:44:50.673-05:00Progress reportIt's now been three and a half years since I was diagnosed with Chronic Kidney Disease (CKD) and began my quest to cure myself. Although I have not achieved the dramatic recovery I was hoping for my condition appears to be generally stable and this can be considered an acheivement given that the tendency for CKD patients is to gradually lose kidney function until replacement or death becomes necessary. Here are my findings and tips to date so that others may benefit from them (none of which should be construed as medical advice!):<br />
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<b>Comments on this blog</b><br />
Thanks to all the people who've taken the time to comment on this blog. I have just noticed I had almost 2 years of comments pending my approval. These have now been posted and I will try to answer them.<br />
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<b>Background information and lab test results</b><br />
For anyone interested in the technical details, I have a 40 year old male of British/Dutch/Austrian ancestry living in on the caribbean coast of Mexico. Height 1.82m, current weight ~76kg (previously 85kg). You can review my complete lab test result history here:<br />
https://docs.google.com/spreadsheet/pub?key=0AhX6YZKS2qpCdFpObVlQQXNmMjBfT19kUUdxUHAxaEE&output=html <br />
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<b>UK consultation</b><br />
In April I consulted with a nephrologist in England, Dr. Rowe, and also took blood tests. The UK test results were consistent with all my previous test results done in Mexico. The nephrolgoist provided the following information:<br />
<ul>
<li><b>Natural decline: </b>The natural tendency of a healthy kidney is for a reduction in function with age of around 5 to 10mL/min per decade, so based on my current estimated GFR (glomular filtration rate) of 30 to 40mL/min, he would expect "renal replacement therapy" (kidney transplant) to be necessary in 10 to 20 years, as a GFR of 15mL/min is the level at which toxins are no longer adecuately removed from the body.</li>
<li><b>Ultrasounds: </b>Ultrasounds don't provide good diagnostic information for kidney disease and the measurements are highly variable, depending on the operator, etc. I have had three ultrasounds (one a year) but in his opinión they can't be used to observe any changes, just to confirm the presence of damage (scar tissue). He also doubted that the number of kidney stones had changed as no stones have been passed (the first ultrasound showed 4 stones, the most recent only 2).</li>
<li><b>Diet: </b>In his opinion diet options should be based on reducing the kidneys workload and for this reason salt should be avoided as much as possible as well as excessive protein. He noted that protein reduction may reduce the measured serum creatinine levels but this doesn't necessarily indicated improveed kidney function, it may just indicate less creatinine in the blood due to less protein consumed.</li>
<li><b>Blood pressure: </b>He believes strict blood pressure control to be very important and recommends continuing to take 50mg/day of losartan.</li>
</ul>
</div>
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<b>No miracle cure</b><br />
My research and experiences to date have reduced my expectations of finding a "miracle cure". Even though kidney tissue does not normally regenerate I had originally hoped to somehow (through some "alternative" therapy) find a way to turn on the gene responsible for kidney growth and achieve miraculous regeneration of the damaged tissue. However, I have found little evidence of this type of miracle, even among people involved in advanced spirtual/meditive practices. My focus, therefore, has shifted away from looking for a cure and more on accepting the cards I have been dealt and playing them the best I can. This means striving to be as healthy as possible and trying to enjoy as much as possible whatever time I have left. More on this below.</div>
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<b>Patient involvement</b>I think it's very important for anyone with any kind of disease to get involved and learn about the disease and your body, and not just blindly follow your doctor's orders. I have consulted with three Nephrologists, as well as reading a wide range of materiales, and there have been significant differences in their treatment recomendations. This doesn't mean any of them are "wrong" but the reality is that a doctor is just a human being and the state of medical science is advancing all the time. However well trained your doctor is, and however much experience he has, he has never experienced what it's like to be you and live inside your body. He also doesn't have as much time or interest to think about your case as much as you can.</div>
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<b>Staying healthy</b><br />
Probably the best defence against any disease is maintaining your body in as healthy condition as possible. I always considered myself healthy before but now I am much more so. After much research and reading of conflicting opinions and experimentation, I believe the pillars of health are:<br />
<ul>
<li><b>Sleep. </b>Make sure you get enough of it and wake naturally every day.</li>
</ul>
<ul>
<li><b>Happiness. </b>Make sure you enjoy what you do every day.</li>
</ul>
<ul>
<li><b>Diet. </b>There are so many conflicting messages regarding diet that the area has become a veritable minefield. After looking at the evidence of healthy people living on an extremely wide variety of diets, my personal philosophy is to eat whatever you feel like provided it contains no added sweeteners or salt, as I believe these substances trick your body into believing a particular food is nutritious regardless of its real benefits or otherwise to the body. I also think there is a lot to be said for eating foods as close to their natural form as possible. My personal diet contains nuts, fruits, vegetables, yoghurt, some rice, some corn, some low-salt cheese, some fish/shrimps, no wheat, no meat. </li>
</ul>
<ul>
<li><b>Excercise. </b>There is also lots of conflicting advice about types of excersise but I think everybody agrees that at least 30 minutes a day of some sort of excercise is important for your health. In my case excercise is limited to walking at least 30 minutes a day and maybe once a week doing something more streneous but I feel like I would benefit from doing more! Yoga is probably an excelent option for people suffering from chronic disease as it may help your whole body (and mind) to work better.</li>
</ul>
<ul>
<li><b>Immune system.</b> I've read that a large part of your immune system resides in your gut (intestines) and therefore to have a healthy immune system you need to have a healthy intestinal tract. If you are intolerance to a certain food (e.g. gluten or wheat) its consumption may cause damage or inflammation of your intestines and weaken your immune system. It could be coincidence but since avoiding wheat, and being careful about my diet in general, I have not missed a single day of work due to illness. I have certainly been 'sick' and been aware of having a virus but have only experienced mild symptoms. Previously I would usually miss one or two days a year due to colds or flu (at least that's my perception).</li>
</ul>
</div>
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<b>Blood pressure</b><br />
Most experts believe that avoiding high blood pressure is a very important for conserving kidney function.<br />
At the time of my diagnosis my blood pressure was in the 140/90 range (and often higher). For the last few months it has been in the 120/70 range. I was prescribed losartan (cozaar) but didn't notice any effect from this until I made changes in my diet. Without medication my blood pressure would be in the 130/80 range and taking 50mg of losartan a day keeps it in the 120/70 range (often less). It's hard to be very specific as exactly what foods increase or decrease blood pressure but I would recommend trying the following to see what works for you:<br />
<ul>
<li>Avoid/reduce foods with added sugar </li>
<li>Avoid/reduce foods with added salt (cheese, for example)</li>
<li>Avoid/reduce starchy grains.</li>
<li>Avoid excess fruit consumption (after eating 4 bananas one morning I noticed a spike in my blood pressure. Since then I have cut back on bananas and enjoyed low blood pressure).</li>
<li>Unsalted peanuts with the skin (I eat a fair amount of these and some sources say the skin contains something which reduces blood pressure).</li>
</ul>
<b>Sodium Bicarbonate</b></div>
There a few e-mails going around touting sodium bicarbonate (baking soda) as a 'cure-all' for all sorts of things. They say that the one of the signs of a 'quack' treatment is if it claims to work for lots of different ailments and this has certainly been my experience in general. I have experimented with taking half a spoon of sodium bicarbonate daily (mixed with water and a little grape juice) for extended periods with no obvious impact (positive or negative). Lately I have stopped taking it regularly but I do still take it now and again if I feel like it. It could be my imagination but I feel it like it helps ward off common colds.<br />
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<b>Diuretics</b><br />
There are any number of natural cures for kidney problems, e.g. dandelion tea, or things that are "good for kidneys" that are really just diuretics that excercise your kidneys by making them generate more urine than normal. Some of these cures talk about cleaning your kidneys and removing the 'sludge' but I have never read anything about kidney sludge in any serious medical literature. It is possible that some diuretics may be good for some kidney conditions, or for healthy kidneys, or for passing kidney stones, but I am unaware of any benefit for chronically damaged kidneys. <br />
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<b>That's all folks</b><br />
That's everything I have for you now. The bad news is that if you have damaged kidneys there is no known way of repairing them. The good news is that it may be possible to prevent further damange if you make an effort to live a healthy life. This blog has been written to share my experiences with other people with kidney problems in case it helps them in anyway. If you want to ask me a question please leave a comment and I will respond (eventually!)RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com21tag:blogger.com,1999:blog-7509089945021836114.post-29223194650324496082011-02-24T14:57:00.003-06:002011-02-24T15:02:35.489-06:00Loneliness increases risk of chronic inflammatory diseasesAn interesting article on science suggesting that "loneliness" is a possible cause of chronic inflammatory diseases.<div><br /></div><div><a href="http://www.economist.com/node/18226813?story_id=18226813&fsrc=nlw|hig|02-24-2011|editors_highlights">http://www.economist.com/node/18226813?story_id=18226813&fsrc=nlw|hig|02-24-2011|editors_highlights</a></div>RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com8tag:blogger.com,1999:blog-7509089945021836114.post-309966819640726652010-10-25T10:07:00.004-05:002011-10-22T17:20:06.333-05:00Test results - the complete historyI finally had the brainwave of putting all my test results into a spreadsheet to make it easier to view changes over time.<br /><br />You can view them here if you so desire:<br /><br /><span class="Apple-style-span"><u>https://docs.google.com/spreadsheet/pub?hl=en_US&hl=en_US&key=0AhX6YZKS2qpCdFpObVlQQXNmMjBfT19kUUdxUHAxaEE&output=html</u></span><br /><br /><div>The progress points are:<br /><ul><li>Serum Creatinine back to same level of 18 months ago.</li><li>Proteinuria (protein in urine) way down.</li><li>Increased Serum Hemoglobin (reduction of anemia)</li><li>Blood pressure reduced.</li></ul>The "lack of progress" points are:<br /><ul><li>Serum Creatinine and Creatinine Clearance unchanged (i.e. no improvement in kidney function)</li><li>Uric Acid high (being controlled by Alopurinol)</li></ul><br />After experimenting with many different things, I believe the main factors responsible for the progress are:<br /><br /><span style="font-weight: bold;">Healthy, balanced diet<br /></span>I ate pretty healthily before but I've improved some areas and feel like I could improve some more. After researching and experimenting, my personal advice is to eat whatever foods you feel like in their natural form. This means avoiding anything with added sugar or salt (which I believe trick you into thinking the food is better for you than it really is). I recommend experimenting with removing wheat from your diet for a month to see if you notice any improvements.<br /><br /><span style="font-weight: bold;">Sleep</span><br />I try to make sure I get just enough of it.<br /><br /><span style="font-weight: bold;">Happiness</span><br />Possibly your mental state is the most important factor in your wellness, so I recommend trying to only do things that make you feel good and avoid things that make you feel bad. Again, I recommend experimenting to see what really makes you feel good and what doesn't. It may not be what you expect. Sleep is probably very important for feeling happy as any parent of small children will tell you...</div>RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com5tag:blogger.com,1999:blog-7509089945021836114.post-58986336675927693592010-10-04T21:02:00.002-05:002010-10-04T22:27:52.900-05:00Test resultsJust did another 'full-blown' set of lab tests.<br /><br />The results are basically the same as those of 7 months ago, which can be considered good news as they show no decline in kidney function.<br /><br />The general prognosis for Chronic Kidney Disease is a gradual worsening of the condition until dialysis, so avoiding disimprovement can be considered progress.<br /><br />Here is a summary of the results:<br />* Serum Creatinine 2.0mg/dL (same as it was when my condition was discovered 18 months ago, and lower than the high of 2.5mg/dL of about a year ago)<br /><br />* Creatine Clearance is calculated at 41mL/min. This can roughly be interpreted as meaning my kidneys are functioning at 35% of normal, which is asymptomatic. Below ~15%, however, and death (or Dialysis/Transplant) is not far away... (and frankly, provided my children are grown, I think death may be preferable to dialysis or a transplant)<br /><br />* Protein in 24-hour urine 375mg, about the same as the last test and way down from 1,800mg when my condition was discovered. I understand that this is important as because proteins leaking through the kidneys may damage them further. Normal is less than 225mg.<br /><br />* Uric Acid 7.6 mg/dL. This should be kept below 7 according to my first nephrologist. Taking Alopurinol controls it pretty easily but I'd prefer to be controling it naturally through diet. Will have to research this a bit.<br /><br />Next Steps:<br />* I've been taking Co-enzyme Q10 for 3 months and this doesn't seem to have had any effect so I'll stop that.<br /><br />* I'll probably continue taking a half a teaspoon of bicarbonate of soda every day. I'm not sure if it's helping but it doesn't seem to be doing any harm and it's cheap and easy to take.<br /><br />* I think I need to work harder with my diet. I have a little more body fat than I'd like yet I'm often hungry, which suggests I'm not eating the nutrients my body requires, however I'm not sure what I should be eating (and it's frustrating not being able to eat many of the things I crave because of protein/salt/gluten restrictions).<br /><br />* I'm tempted to dedicate 15-30 minutes every day to "mental programming" activities for a month to see if it helps.RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com1tag:blogger.com,1999:blog-7509089945021836114.post-3618075317621791172010-09-17T18:43:00.003-05:002010-09-29T10:17:27.402-05:00Sonic HealingApparently listening to this "harmonic overtone" style of singing can help your kidneys regenerate and generally help you to be healthy:<br /><br />http://www.sonic-healing.com/store/index.php?act=viewProd&productId=61<br /><br />The program can be downloaded but costs $99 USD. If they offered a money back guarantee I might try it!RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com0tag:blogger.com,1999:blog-7509089945021836114.post-1678117294600367062010-09-05T19:50:00.002-05:002010-09-05T19:54:22.392-05:00Herbal RemedyThis herbal remedy claims to improve creatinine levels and proteinuria. I'm skeptical but I may give it a go at some point if I don't see any improvement from the other things I'm trying:<br /><br />http://www.getwellnatural.com/chronic-kidney-disease.aspxRBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com3tag:blogger.com,1999:blog-7509089945021836114.post-22900238317281983522010-06-19T14:38:00.007-05:002010-07-13T09:44:31.116-05:00Update and reflections<span style="font-weight: bold;font-size:100%;" ><span style="font-size:180%;">Lab results</span><br /></span><br /><span style="font-weight: bold;font-size:130%;" >Creatinine<br /></span>My latest creatinine tests show no change at 2.1mg/dL. This level has remained constant since about january.<br /><br /><span style="font-weight: bold;font-size:130%;" >Ultrasound</span><br />An ultrasound scan revealed:<br /><ol><li>Three of my four kidney stones have disappeared (without specific treatment). This is a relief as it's something less to worry about. My first nephrologist had prescribed what I felt was an aggresive course of 3 different drugs to try and clear the stones, and I decided against taking them (I stopped consulting that nephrologist). The remaining stone is 6mm and apparently it's position is favorable for "passing" (although I wasn't aware of passing the others, one of which was about 8mm).</li><li>There is now good definition corticomedullary differentiation (previous it was poor). I'm not sure of the significance of this but it's supposedly a good sign.</li><li>My kidneys are now smaller than previously: 8.2cm and 9.1cm (compared to 9.9 and 10.6cm previously, and "normal" kidney size of around 10 to 12cm). The ultrasound doctor mentioned that the kidneys were no longer inflamed and 'back to normal', so maybe lack of inflamation is the reason for the smaller size.</li><li>The kidneys still show "moderate to severe chronic inflamatory changes".<br /></li></ol><span style="font-weight: bold;font-size:180%;" >Reflections<br /></span>When I started this blog I was hoping to be able to document the spontaneous recovery of my kidneys by drawing on the healing power of the universe or something. While this hasn't happened (perhaps because I couldn't get into any kind of meditation), I have at least halted the progress of the disease and in the field of chronic kidney disease this is considered a victory.<br /><br />Based on all the test results, the suggestion is that at some point in my life something was causing damage to my kidneys and now it no longer is. Exactly what that "something" was is what caused it to go away is very hard to tell. Maybe not too important as I think the same cure probably applies to various causes:<br /><br /><span style="font-size:130%;"><span style="font-weight: bold;">The "Cure"</span></span> (based on the personal, non medical, experience of one person)<br /><ol><li><span style="font-weight: bold;">Become healthy</span>. The basics of health are the same for everyone (exercise, eat in moderation, don't be overweight, don't smoke or drink in excess) but I strongly believe that different people have very different needs (and this explains why there is so much conflicting advice out there). Try and listen to your own body and figure out what's right for you. I found that juice-fasting for a week was a great way to "reset" my body's food cravings and to figure out what my body really needs. Just for reference, my diet is quite simple and consists principally of: Avocados, White Rice, Tuna Fish, Amaranto, Raisins, Almonds, Pecans, Bananas, Beans, Peas, Mushrooms, Corn Tortillas, Potatoes, White Fish, Shrimps, Grape Juice, Pineapple Juice, Grapefruit Juice, Eggs, Seaweed, Lettuce. I specifically avoid meat and gluten, and moderate my consumption of milk products, refined sugar and salt.</li><li><span style="font-weight: bold;">Get plenty of sleep</span>. I discovered my blood pressure becomes elevated if I don't get a good nights sleep. I recommend sleeping as much as your body needs. In my case about 8 hours a night.</li><li><span style="font-weight: bold;">Enjoy life!</span> I believe that genuinely happy people are naturally healthy as they instinctively make the right choices for their bodies. Worrying about the future doesn't help you today and today may be your last...<br /></li></ol><span style="font-size:130%;"><span style="font-weight: bold;">Gluten?</span></span><br />In my particular case, I have a suspicion that an intolerance to either gluten or wheat could be responsible for my kidney damage. The reason I suspect this is that:<br /><ul><li>I discovered that removing bread from my diet resolved long time problem I've had with "balls of gas" in my intestines. These actually felt like hard lumps in my belly. This suggests that my intestines at least are affected by gluten and it isn't a complete stretch to imagine that the problem is an auto-immune one where the body's own response to detecting gluten (or some other component of wheat) in the blood causes damage to its own organs.</li><li> The gas problem first occurred at the same time that high levels of protein were first detected in my urine.</li></ul> It is a bit annoying not knowing for sure if wheat is the problem, as I LOVE the taste of bread but I love my children more so I'm going to play it save and avoid it as much as possible.<br /><br /><span style="font-weight: bold;font-size:180%;" >The future<br /></span><span style="font-size:100%;">Short of achieving regeneration of my kidneys (something medical science believes to be impossible) I don't think there's too much more I can do for them, so my experiments will probably reduce (and with them, the amount of blood tests and blog updates).</span>RBBhttp://www.blogger.com/profile/18303422821202662231noreply@blogger.com7